Breathing or lung problems. This can include setting an alarm or using a timer. And your doctor can use this information to adjust your treatment plan if needed. I also just stopped sweating. It is labeled for blood pressure, but I get it for off label OCD/SSRI intolerance. Medication-related changes in taste are important to identify because such changes can lead to poor medication adherence and negatively affect chronic disease management.2 Taste disturbance can also negatively affect nutritional status; one study found that individuals with taste disturbances consumed 500 fewer calories per day and ate fewer fruits and vegetables than those without taste disturbances.22 With dysgeusia, one may be more inclined to compensate for the altered taste with added salt or sugar, which can also negatively affect health outcomes. i'm on it and cannot drink anything with bubbles. I'm taking it to help control seizures. Video chat with a U.S. board-certified doctor 24/7 in a minute. 2023 Healthline Media LLC. If you have questions about side effects from Topamax, talk with your doctor or pharmacist. it totally sucks. Ohhhh Topamax. Question posted by sallymaebooth on 22 April 2013, Last updated on 22 November 2016 by ltwilliams72, I've read on the side effects that agitation is a possible side effect - I've only been taking topamax for a week now. (The average amount of weight lost in these studies wasnt noted.). I will be building up to eventually be at 100 mg twice a day will this side effect go away? and our For example, fatigue (low energy) and feelings of burning or numbness in your hands and feet may go away as you continue taking Topamax. Bisanne 1500, 3 room apartment. - Airbnb Talk with your childs doctor about your childs risk of side effects from Topamax. bronchitis. Why does the taste of topamax (topiramate) stay in my mouth and how can I get it out? Folic acid is also a great supplement. Topiramate ( Qudexy XR, Topamax, Trokendi XR) Valproic acid If the drugs don't work, you might have surgery to remove the damaged sensory receptors (olfactory mucosa) in your nasal cavity. Evaluating data on a total of 2,902 participants in the meta-analysis, the researchers demonstrated that alteration of taste as an adverse effect of topiramate was found only among patients taking topiramate for migraine disorders and not in those taking topiramate for epilepsy. And this could increase the chances of Topamax causing a high level of acid as a side effect. Be sure to talk with your doctor and pharmacist about all of the drugs you take before starting Topamax. If you have kidney problems, such as chronic kidney disease, you have an increased risk of both metabolic acidosis and kidney stones as a complication. This helps researchers understand the risks of using Topamax during pregnancy, which can help others make decisions about their treatment. Debra Rose Wilson, Ph.D., MSN, R.N., IBCLC, AHN-BC, CHT, problems with sleep, such as sleepiness or, speech problems, such as having trouble thinking of the right words to say, eye side effects, such as sudden vision changes*, severe, negative changes in memory or mood, high level of ammonia in the blood, which can cause, trouble with memory, concentration, or thinking clearly, Not in the United States? Learn about common, mild, and serious side effects it can cause and how, Migraine auras are sensory symptoms, including visual disturbances and physical sensations, that occur during or before a migraine episode. The first beverage she tried following initiation of topiramate 25 mg by mouth twice daily was cold seltzer water from a can, and she immediately noted a flat taste. Its possible. Can diet help improve depression symptoms? All rights reserved. BMD describes how strong the bones are. You may remove weapons or substances that can cause harm if you can do so safely. No one told me that so I'm letting you know. Overall these things don't bother me. Additionally, missing too many doses of Topamax (or suddenly stopping the drug) may increase the risk of seizures. Topamax (topiramate) is a prescription drug thats used to treat epilepsy and help prevent migraine headaches. Mild side effects from Topamax are common. Please be careful & watch your symptoms. | Topiramate - Patient dry mouth. Topamax doesnt rely heavily on your liver to help remove it from your body. Liver problems. 18 Lowered BMD could mean your bones are weakened. Available for Android and iOS devices. The conditions and factors to consider include: Bone problems, such as osteoporosis. My list consists of soda's, coffee, chocolate, peanutbutter, spaghetti sauce, anything really salty, and Ranch dressing has a weird taste that I can't even explain. But again, it sounds like over 50% of people take topomax with great results. For these reasons, you should not stop taking Topamax unless your doctor tells you its safe to do so. Here are some frequently asked questions about the drugs side effects and their answers. And do not stop using Topamax unless your doctor recommends it. UPDATE: OMFG! Topamax (topiramate) is a prescription drug that's used to treat epilepsy and help prevent migraine headaches. Mood problems or suicidal thoughts. Most side effects of Topamax in children are expected to be the same as those in adults. Topamax (topiramate) tablets, for oral use; Topamax (topiramate capsules) sprinkle capsules, for oral use. Talk with your childs doctor, or a pharmacist, if you have questions about Topamaxs side effects in children. But these side effects werent common in studies of the drug. Having reduced BMD could indicate that you have weakened bones. .it is the topamax. Below, youll find lists of the drugs more common, mild, and serious side effects. But there havent been studies done on Topamax withdrawal. See additional information. Educational text answers on HealthTap are not intended for individual diagnosis, treatment or prescription. Patients on topiramate therapy may find carbonation perception enhanced by drinking through a straw, and pharmacists can mention this as a potential counseling point. Luykx J, Mason M, Ferrari MD, Carpay J. Donegan S, Dixon P, Hemming K, Tudur-Smith S, Marson A. Naranjo CA, Busto U, Sellers EM et al. The sprinkle capsules can be swallowed whole or opened and poured onto food. But taking the drug with food may help lessen any stomach problems you have. Or they may suggest you wean off Topamax and try a different treatment for your condition. Your doctor can help determine whether treatment with Topamax is safe for you. One was the bad taste in my mouth all the time. If the side effects seem life threatening or you think youre having a medical emergency, immediately call 911 or your local emergency number. I get compliments on it everyday! (An active ingredient is what makes a drug work.) Are there any side effects of Topamax that I should tell you about right away? They may recommend ways to ease your symptoms and determine whether you should keep taking Topamax. They may be able to suggest ways to ease your symptoms. Topamax is also commonly used to prevent migraine headaches in adults. I want real experience please not someone posting side effects to the medicine as I've read those already. Drugs.com provides accurate and independent information on more than 24,000 prescription drugs, over-the-counter medicines and natural products. Theyll advise whether its safe for you to take Topamax. Like most drugs, Topamax can cause an allergic reaction in some people. Carbonation dysgeusia associated with topiramate The absence of warnings or other information for a given drug does not indicate that the drug or drug combination is safe, effective, or appropriate for all patients or all specific uses. If untreated, this condition can lead to bone problems, including osteoporosis (weakened bones). Topamax is known to pass into breast milk. This side effect wasnt common in clinical trials and was only reported by people taking the drug for epilepsy. Oxford University Press is a department of the University of Oxford. Topamax can cause certain stomach-related side effects. Apparently it does make soda taste weird!!!!!!!!!!! Drinking alcohol while taking Topamax can increase your risk of certain side effects and increase the chance that theyll be serious. Topiramate (Oral Route) Proper Use - Mayo Clinic They can help you figure out if youre having other mood changes that could cause these side effects. Everything tastes sweet. Taking Melatonin: Can You Mix Melatonin and Alcohol? MNT is the registered trade mark of Healthline Media. When my doctor prescribed Topamax to me I was also in bed crying, we were on Zoom together, so maybe she said something about my taste buds going funky and I don't remember lol. If your symptoms seem life threatening, call 911 or your local emergency number immediately. But if you have any symptoms that are ongoing or that bother you, talk with your doctor or pharmacist. Its possible to have weight loss from taking Topamax. It can lead to blindness if its not treated. Soda still tastes strange. It is hard while you are building up. Topamax can cause a high level of acid in the blood. In clinical trials, reduced growth was more commonly seen among children ages 6 to 9 years. Agitation - taste & smell off while beginning topamax? - Drugs.com (i do know someone who has been taking it for years for seizure control and no problems) As for the HAIR. However, you should not stop taking Topamax unless your doctor recommends this. However, if your symptoms are serious and you think youre having a medical emergency, immediately call 911 or your local emergency number. During a crisis, people who are hard of hearing can use their preferred relay service or dial 711 then 988. Possibly. Perhaps with a straw the carbonated beverage is more concentrated on the tongue, where taste is perceived. Luykx et al12 performed a meta-analysis of 10 randomized controlled trials to compare topiramate-related adverse drug reactions in patients taking topiramate for epilepsy and those taking topiramate for migraine disorders. ? Connect with a U.S. board-certified doctor by text or video anytime, anywhere. Many are mild and tend to go away on their own after a few days or weeks. Is the ketogenic diet right for autoimmune conditions? A systematic review of placebo-controlled trials of topiramate: how useful is a multiple-indications review for evaluating the adverse events of an antiepileptic drug? Then, you can share this information with your doctor. This could raise your risk for having a high level of acid as a side effect of Topamax. When its time for you to stop taking Topamax, your doctor will lower your dosage slowly over time. These symptoms could be life threatening and require immediate medical care. 1. It may take 8 to 12 weeks for you to see the full effect of Topamax ( topiramate) on your migraine headaches. This article is published and distributed under the terms of the Oxford University Press, Standard Journals Publication Model (. A migraine is a type of headache that causes throbbing pain, often on one side of the head. Last medically reviewed on October 25, 2022, Trokendi XR, which is used for epilepsy and migraine, can cause side effects such as weight loss. Examples include Stevens-Johnson syndrome and toxic epidermal necrolysis. In most cases, these side effects should be temporary. Kidney problems may increase the level of acid in your blood. It can cause side effects that range from mild to serious. Healthline Media does not provide medical advice, diagnosis, or treatment. Please note, we cannot prescribe controlled substances, diet pills, antipsychotics, or other commonly abused medications. Most of the participants did lose weight while on the drug, significantly more than the placebo group, however, the side effects discouraged some from continuing the trial. Carbonation dysgeusia after topiramate initiation has been reported by patients taking the medication but is not well identified in the literature. Liver problems could raise your risk for a high level of ammonia in your blood, which is a possible side effect of Topamax. Theyre also more likely to be born small for their gestational age. I've been on Topamax for two months and I still can't stand to smell food, or taste what I eat or drink. Ok so I drink a crap ton of Coca Cola and for some reason it taste like it has Vodka in it lol. If you have side effects that wont go away or are hard to deal with, your doctor will likely have you wean off Topamax. A 39-year-old Caucasian woman developed chronic carbonation dysgeusia after initiation of topiramate following a generalized seizure. Cookie Notice * To learn more about this side effect, see the Side effects explained section below. Below are a few of the more common side effects reported by people who took Topamax in studies. Treatment involves addressing the underlying cause of dysgeusia. Case assessment using the adverse drug reaction probability scale of Naranjo et al indicated that topiramate was the probable cause of the patients carbonation taste perversion. This lessens your risk of seizures after stopping Topamax. Topamax andtaste buds? : r/Topamax - Reddit Symptoms can be mild or serious and can include: For mild symptoms of an allergic reaction, call your doctor right away. The topamax makes me SOOOOOO sleepy I can hardly keep my eyes open. Over the course of months she tried multiple carbonated beverages, including soda, seltzer, beer, champagne, and energy drinks. We avoid using tertiary references. Topamax: Side effects and what to do about them - Medical News Today Click here for more links and local resources. They may suggest medication to manage your symptoms. Taste perversion or taste dysgeusia in association with topiramate use has been reported in numerous randomized controlled trials; however, most of the trial reports did not define the specific manifestation of dysgeusia as carbonation dysgeusia. Talk with your doctor if you have questions about how drinking alcohol can affect treatment with Topamax. This includes conditions such as asthma and chronic obstructive pulmonary disease (COPD). You may have mild side effects from Topamax. You can also talk with your doctor or pharmacist. Yes, Topamax may cause sexual side effects, such as decreased sex drive. Apr 29, 2023 - Entire chalet for $233. Medical News Today has strict sourcing guidelines and draws only from peer-reviewed studies, academic research institutions, and medical journals and associations. Doctors typically provide answers within 24 hours. However, I'm really losing weight. Rarely, Topamax may cause mood changes. The drug makes food taste strange or even bad, and reduces food cravings. Joeyshoney Topamax dosage for migraines. Mouths are sensitive to the effects of carbon dioxide, the substance that initiates the chemical pathway eliciting a fizzy and tingling sensation upon consumption of carbonated beverages.19 Results from Dunkel and Hofmanns18 study suggested that CO2 acts on the sour taste system as well as somatosensory pathways; the fizzy and tingling perception of carbonated beverages is likely due to gustatory and somatosensory inputs leading to multimodal sensation. Stay with the person until professional help arrives. Talk with your doctor if you experience cognitive side effects while taking Topamax. Talk with your doctor about which other treatments are better choices for you. Bone problems. You should always consult your doctor or another healthcare professional before taking any medication. However, it isnt known how often this side effect may have occurred in clinical trials. You should avoid these activities until you know how Topamax affects you. These side effects can vary depending on which condition the drug is being used to treat. Youll likely take Topamax long term if you and your doctor agree that its working well for you. After a while it turned into simple forgetfulness. Get prescriptions or refills through a video chat, if the doctor feels the prescriptions are medically appropriate. Topiramate is used alone or with other medications to prevent and control seizures ( epilepsy ). The term carbonation dysgeusia is used to describe distortions of carbonation taste quality leading to diminished or complete elimination of the pungency or prickly sensation experienced on imbibing carbonated beverages.8 Other cases of topiramate-induced carbonation dysgeusia have been widely mentioned in various Internet patient forums.9,10 Although topiramate-induced dysgeusia has been reported in numerous randomized controlled trials, most of the trial reports did not define the specific manifestation of dysgeusia.11-13 Furthermore, our PubMed search, conducted without date limits using the terms topiramate and carbonation dysgeusia or drug-induced taste perversion, identified no previous reports describing this reaction in detail. You should not take Topamax if youve ever had an allergic reaction to Topamax or any of its ingredients. Your side effect notes can include things such as: Keeping notes and sharing them with your doctor will help your doctor learn more about how Topamax affects you. The list below includes factors to consider. Our website services, content, and products are for informational purposes only. Below are a few questions you may want to ask: If you have migraine, consider signing up for Healthlines online newsletter. Pregnancy registries collect information about the drugs effects when used during pregnancy. I just started on Topamax (topiramate), (topiramate) but I've gotten a headache today that doesn't seem to want to go away. Topiramate is a second-generation antiepileptic drug that is used in the treatment of seizure disorders and migraine headaches. These can include cleft palate and cleft lip, and being smaller than usual for their age. For example, the following side effects were more likely to happen with higher doses (200 mg) of Topamax (compared with 25 mg or 50 mg, for example): For details about side effects in studies, you can see Topamaxs prescribing information.